I'm the mom of a beautiful Type 1 daughter and married to a wonderful husband who also has Type 1! This blog serves as a place for my thoughts and feelings, in the hopes that it will help other families struggling with the many challenges diabetes presents. I can't always promise it is uplifting...but, it is honest.

And, of course, it is by no means meant to offer medical advice.

Tuesday, February 12, 2013

Spare a rose, Save a child

When Jessica was diagnosed with Type 1 diabetes at age 7 my world shattered.  But, because we live in the USA she is now thriving and healthy.  Other parents are not so lucky.  In other parts of the world, little girls just like Jessica do not go on to become healthy, happy 10 year olds.  They die.  And, this is not ok.  Luckily, there are organizations that are trying to help.  This Valentine's Day support Life For A Child.  Spare a rose and save a child.

Just $1 a day provides a child with:
  • regular insulin
  • quality blood glucose monitoring equipment (meter, strips, lancets)
  • essential clinical care
  • up-to-date diabetes education materials
  • specialised diabetes training for medical staff 
The scope of what needs to be done is vast.  Diabetes management is complex. While the first step is getting access to insulin, it needs to be followed up with education on managing diabetes, extending sustained care and also improving the quality of care. This takes both time and ongoing resources, so donations such as yours are crucial to the success and longevity of the Life for a Child Programme. Thank you for your contribution.
Dr Graham Ogle, LFAC General Manager.
Join myself and other bloggers from the Type 1 diabetes world in getting the word out.  This Valentine's Day be a hero.  Spare just one rose, and instead donate a dollar to save a child.

Thank you.



Thursday, February 7, 2013

It Takes A Village

I don't know how patients do it alone.  I truly think I had Caregiver Burnout last month.  And, I think Jessica had Diabetes Burnout.  We were both just so sick of every check, and dealing with every high and low.  Math tests that had to be taken during recess due to high blood sugars.  Site changes, Dexcom changes, Dexcom alarms, the food scale, guessing at carbs, packing all the ridiculous diabetes baggage for a trip, security fiascos, and the list goes on and on.  I was feeling unusually down, and I think Jess was too.

And then something wonderful happened.  It was time for the Children With Diabetes Focus on Technology conference.  Home.  Friends.  No explanations necessary.  No food scale necessary.  Inspirational people.  And, phenomenally inspirational talks by Sebastien Sasseville and Ed Damiano.

I came back from the weekend refreshed, full of new energy and ideas.  And, Jessica came back happier and less angry.  It truly takes a village.

And, this week when the sneaky "I hate diabetes" moments have snuck into our lives, I have instead thanked diabetes.  I can't believe the wonderful people I have met because of diabetes.  Our circle has expanded in huge ways that never would have occurred had Jess not been diagnosed.  I have watched my T1 hubby become hopeful again, happier, less alone.  I don't think we ever would have attended a CHILDREN with diabetes conference had Jess not been diagnosed.  But, it turns out that Children With Diabetes is the perfect circle of support for ADULTS with diabetes.  We have met so many absolute heros who have been living with Type 1 for 20, 30 years and more.  They are inspirational.  They provide support to our whole family.  They give me perspective.  They lighten my load.  They share a kinship with my T1 hubby.

So many "wow" moments, so many inspirational moments.  Below are just a few of the tweets from the conference:

"Avoid miscarried helping."

"No one is truly independent.  The hallmark of being an adult is knowing when you need help and asking for it."

"Great response to teenagers: how'd that work for you?"

"Teasing or bullying hurts our (parents') hearts more when it is about diabetes."

"Ask your child how they would like you to ask them what their blood sugar is."

"Give your child the gift of struggle."

"Fair is something you buy tickets to.  The rest is called life."

"Preschoolers may think they did something to cause diabetes."

"My daughter is not a mouse.  If she was she would have been cured 300 times by now."

"Pre-bolus and check one more time a day."

"The person with diabetes who knows the most lives the longest."

"We need to change to a prevention minded society."

"You can set the bar, but it's important to know that bar moves."

"It's ok if diabetes slows you down, but don't let it stop you."

And, perhaps the best quote to end with (from Sebastian Sasseville): "Do not regret having diabetes.  Greatness always come in the face of obstacles."

This is a ridiculously hard walk, but you don't have to walk it alone.  It takes a village to raise a Type 1 child.  And, it takes a village to be an adult with Type 1.  Thankfully, that village exists...in the form of a wonderful organization called Children With Diabetes.